in urgent need of someone to talk to

 

being gone for so long, i don't even remember my old friends i made, and i'm sorry i haven't gotten time to get to make new ones.

i just feel...idk like i want to cry and tell the world "why me? why my family?"

i'll just get to the whole story. you don't have to read if you don't want to. i just feel really lonely right now and i don't feel like talking to my real friends because i feel all they would do is pity me.

it started in january this year. i had my first "seizure" one night while i was watching pinocchio with my sister. i suddenly couldn't breathe and out. i woke up in one or two minutes. since it was the first time something like this has ever happened to me, my parents brought me to the er. the doctors did lots of tests, but couldn't find anything so they just said it was probably due to stress and low blood pressure. it wasn't a huge issue, and i was free to go home after a couple of hours.

basically, the doctors said it wasn't a huge thing to worry about and said that teenage girls like me faint all the time.

i thought it was a one-time thing, so i didn't really bother with it.

then came september.

i was watching tv with my sister and mom and i suddenly felt that shortness of breath again. i tried to drink some water, but it didn't help. i out and ended up falling off the chair, hitting my head on the dresser, and my mom said my body was really stiff and that i was mumbling. this episode lasted about 5 minutes. since i was taking so long to come to, my mom called the paramedics (i live a couple blocks away from the hospital). when they arrived, i was conscious but really exhausted. i could barely open my eyes and they carried me downstairs and put me on the gurney. my mom said all the neighbors were outside, asking what was wrong.

once i arrived in the er, it took me about 2 hours to get back to normal and not feel so tired. the doctors did an ecg/ekg this time and found that qt interval was over 600. worried, they re-did it after a couple of hours and it dropped down to the 300s. then they recommended me to see the neurologist which i did. she didn't find anything wrong, but ordered an eeg and a mri scan for me to do. both of the tests turned out positive. i was off the hook for a month.

and then my cardiologist appointment came on thursday, november 12. they did another ekg and again, my qt interval was almost up to 600. (the normal time is less than 460 ms, and anything higher than 440/460 is abnormal. the cardiologist was super worried and told me to admit to the hospital. that's how i ended up hospitalized. it's been five days for me.

the doctors said i have long qt syndrome which is disorder of the heart's electrical activity. it takes longer for my heart to recover from a beat which is bad because it opens up the possibility of arrhythmias. they have started me on medication which will help control it and stop me from having fainting episodes. the reason i have to stay so long is because they're starting on a low dose and monitoring how my heart reacts to it and slowly getting the dosage higher. 

it is a genetic disorder, so the doctors recommended my whole family get tested for ekgs. my brother's turned out positive for long qt, so he was admitted to the hospital on saturday night. my sister's was at the borderline and my parents were normal.

i was with my dad when the doctors told us to admit my brother in, and i just saw how stressed he was. it was a lot to take in, and that meant that both of my parents had to stay with us, my sister being at my grandma's. sunday was normal, my aunt and great-aunt came to visit us as well as my sister. 

then today came. i was supposed to be discharged today, especially since i had good results during the stress test. however, the doctors post-poned my discharge because of another factor: my sister and my mom. the doctors felt it would be safer if my sister was admitted as well and both my parents got re-tested. my mom turned out positive this time.

i don't think i will ever forget the moment my dad walked into the room. he told me that my sister and my mom had to be admitted and started on the medication and he was crying. it was the first time i ever saw my dad really cry. i know it's a lot of stress on him. there's so many things to worry about. we have to get an aed in the house which is like $900, and now that my mom has it, she won't be able to drive alone. i don't know how things will turn out for my family. 

the doctors keep saying we're lucky we found out, which we are, but it's so much...bad news keep on piling up.

i haven't cried yet. i think the reason i haven't cried is because i'm still in shock. i still haven't felt the reality of this situation. but looking at my dad, i feel hopeless. there's nothing i can do to make it go away.

i think the only reason i'm not in a depressed state is because of kpop. i was very excited about bap's comeback and loved their mv. i have also been watching korean variety shows throughout the day (i.e. cool kiz on the block, we got married, running man). but take that away, i would be bawling my eyes out. 

my parents are coming right now with my sister. the transportation is rough. since the hospital is downtown, traffic is hectic and parking is nearly impossible. it takes over two hours to get here because of the traffic and i feel so bad for my parents to continue going back and forth.

i really need some good news today. thank you if you've read this far.

to cheer me up, to all the writers out there -- if you could write a rv seulgi x male idol one-shot for me, i will be eternally grateful. ( have been looking for fics of her to read, but sadly she doesn't have many :'( )

 

 

Comments

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-PenPen
#1
Hey. I'm not exactly sure if you remember who I am and it's certainly been years since I was last on. I'm so sorry to hear these news and I hope you're doing well now. Those thoughts that you have right now is definitely saddening but if you truly think about it, even though this hit your family, be glad that you didn't discover it any later. It's a miracle that this was discovered right away. I honestly believe that being positive in this situation brings in hope and laughter. Stay strong ♡.

P.S; If you ever need any distraction, try downloading melodies on your phone to soothe down your mood. It really helps!
xSilentxStar
#2
Hi, I know that we haven't spoken in such a long time but I just want you to know that I'm here for you, we are all here for you. Stay Strong~ I know how you feel when you say why me? why my family? and all honesty I'm not joking. My aunt in Ohio had a at her job, then had another in the hospital back in February and now she's brain dead. Fast forwarding to August, my grandpa in Cambodia is deathly ill and doctors won't look after him because they said he's to old....Then in September I was admitted into the ER for pneumonia, then in November my blood related aunt who's been so dependent on me since I was 7 was diagnosed with Cancer which is at the 4th stage and its impacted her whole body, so she has spottings in her lungs, and her bones are deteriorating slowing, and there is a mass growing on her spine that could paralyze her...and its been really stressful for my family...I also heard that my other grandpa in Minnesota has liver cancer and is most likely not going to make it. I just want to say we need to stay strong for our families, show them hope not only for them but for us. Its a dark time now, but everything will be fine..just have that mind set. I know you may not read this all but...Prayers to your family~^^ Be strong..
lingericious
#3
Oh my gosh, I really don't know what to say. But if you wish for any listening ears, we'll all be here. And yes, I read it all the way through to the end. I just sincerely hope you and your family will get better but I know that these are just words. I hope that there would be more hilarious korean variety for you too!! I'm not sure if you watch Infinity Challenge, it has Jaesuk as well. I don't watch it but my friend prefers that to Running Man (I'm sorry I prefer Running Man though). I know this is a hard time to go through. Hope that you can talk to us, and in turn your parents can talk to you so that they also do not feel so stressed and upset. Talking might not help the situation, but the feelings and the stress...
kpop4u #4
stay strong! god only gives you challenges you can handle. although i might not fully understand, i hope that you will pass this quickly. my prayers will be with you. cheer up and fighting! ((so sorry i really don't know how to make someone feel better :-())
KISSmeSooVin598
#5
Hey, we haven't talk with each other for a while and I feel sorry for what you and your family have been through. I know sometimes you think it's unfair but this came to you because you can handle it. Besides you, there are also other people that experienced this kind of downfall, including me, although it's not a bout sickness but it's about my broken family. I know it's hard for you to do this but try to be grateful, even in your situation. Be thankful because you still have your whole family to help you go though all that. And about the fic, I will try to write it eventhough I don't know about Seulgi at all ^^. Fighting!!
Iheartkpop_93 #6
I'm sorry to hear that you and your family are going through such a difficult thing. Stay strong and keep fighting! You are not alone, many ppl besides you will be giving you the support and get over this tgt. Maybe if you cry it out, you'll feel a lot better. Occupy yourself with kpop so that you will feel happier and won't be stress.
Take care and god bless you.
AvyA7X
#7
I'm sorry to hear that you and your family are going through such a difficult thing. Things will get better so don't lose hope~
Take very good care of yourself!
thinteen
#8
stay strong girl! really miss your writing rn ;') i just learned about that kind of diseases last week
LeAwesomeKpopper101 #9
Hi I know we don't really talk and stuff, but I really hope you're doing okay. I hope you and your family can get through this ordeal in a positive manner and not lose hope. I'll pray for you! FIGHTING!!!
Miney26 #10
Hi I just wanna say that you'll be able to make it through this and just know that there are people out there praying for you to get better I am too so please think positive.
AK4ever
#11
I'm sorry to hear that you have to go through all of this but hopefully someday everything will be better in the long run you just have to keep fighting and remain positive. You'll get through the tough time your having right now. Just listen to kpop to help sooth yourself and I pray that you can make the best out of everything and continue to fight no matter what. <3
someasiangurl #12
Hey Dear,
I'm sorry to say that I don't know what your going through right now but I do know what it feels like to see your family in pain and so vunerable. But remember your not alone there is people all around you to give you support to help you get through this pain. And one you must remember is to stay strong and to continue fighting. Remember to look at the bright side and your family will see you standing so strong their suffering will lessen. I don't know if what I'm saying will help but I hope it does. I pray for you and your family in my prayers. Come talk to me if you need someone to talk to. Stay strong and stay happy because it will get all better eventually, remeber if you need someone to rant to I'll lend a shoulder any day.


FIGHTING!!!!
softsology
#13
;_; I miss you and I hope things get better!